Get involved

Donate time, money, advice, support – every little thing helps give hope to people with a bleeding disorder.

Make a difference

Share stories and advice, campaign for change. We're in this together.

Become part of the family

We're united through blood, and we're there for each other no matter what.

Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.

Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.

Through our community, we find the freedom, opportunity and fun in life after diagnosis.

What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly Diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & Treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day-to-day Living

Latest news at the Haemophilia Society

07 Apr 26

Community Matters – give us your feedback

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03 Apr 26

From my family to yours. Why we’ve chosen to sponsor Family Camp in memory of Richard. 

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05 Feb 26

The Haemophilia Society receives one-year government grant

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09 Jan 26

Hemlibra administration kit needle information (updated April 2026)

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Upcoming & recent events at the Haemophilia Society

  • 13 Jun 26 - 13 Jun 26 at 9:30am

VWD and me

An information day for people living with von Willebrand disorder Join us for an information…
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  • 23 Jul 26 - 26 Jul 26

Family Camp 2026

Dates: Thursday 23 July to Sunday 26 July  Venue: Whitemoor Lakes, Barley Green Lane, Lichfield, WS13 8QT  Cost per person: Adults…
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  • 24 Oct 26 at 2:30pm

Service of Remembrance and Thanksgiving

For all those people with inherited bleeding disorders who have died due to their treatment…
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Members Stories

Tim’s Story

‘I had acquired haemophilia – but no one would listen’  Tim had just turned 74 when he noticed…
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Elliott’s Story

‘I had gene therapy five years ago – and haven’t had a bleed since’  Thanks…
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Joey’s triple fund-raising inspirations

Three very special people with bleeding disorders inspired Joey Beavis’ insane fundraising challenge of walking…
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Letter to the Prime Minister June 2023

Dear Prime Minister,  We are writing to you as the charities that work with, support…
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Become a Member

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Campaign with us

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Get Involved

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

Reach Out

We can be found on all the usual online channels – Facebook, Twitter, Instagram and e-mail. But if you’re more of a people person, we’re still on the end of a phone.

Get connected

Understanding Haemophilia & other bleeding disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A & BVon Willebrand Disease

Browse bleeding disorder information